OK, so I touched in my last post on the fact that Finn was officially diagnosed with asthma. I'm annoyed. You know, the whole time Finn had cancer, I never asked why. Because really, why anyone? I didn't ask why my kid because it could be anyone's kid. Or husband, sister, mother, friend, etc. It sucks no matter how you slice it.
I didn't ask why when he had to get glasses.
I didn't ask why when he was diagnosed with the sensory issues.
But now, I've had it. Asthma? Seriously? Why? Why does he have to deal with something else?
This kid should have a free pass from now on as far as I'm concerned.
I'm just pissed off and annoyed. I'm annoyed that my kitchen counter once again looks like a pharmacy. I'm annoyed that he has to sit on the couch with a tube in his mouth twice a day so he can know what it's like to breathe freely like the rest of us do. I'm annoyed that his medication is currently running about $150 FOR A TWO WEEK SUPPLY--that's our share after the insurance pays it's share.
I remember when we were paying for chemo. When Finn was ready to start preschool, he was just finishing chemo, so we said to ourselves, "Well, chemo money will now be preschool money." When Finn finished preschool, we found out we had to pay for all-day kindergarten. So we said to ourselves, "Well, preschool money will now be kindergarten money." And then during kidnergarten, we had the added bonus of paying for occupational therapy for his sensory issues. Not exactly a drop in the bucket.
So this year we thought we'd be pocketing some cash for a change with no OT, no kindergarten tuition, no preschool or chemo to pay for. Ah, finally something to look forward to.
I cannot get over how expensive this medication is. Granted, hopefully we'll only have to pay this outrageous price for a few months, then he'll cut down to taking it only once a day and our outlay will only be half as outrageous.
I just want you to know where I'm coming from right now.
I'm mad at the world.
And, just to get everyone really riled up, I'm so mad at the way our country is being run right now.
I'm not a Republic or Democrat. Seriously, I'm not affiliated with either party right now because frankly, they're all a bunch of crooks (and that is said with apologies to the ONE, and I mean only one, politician that I have ever encountered that I think is the real deal--really working for the people instead of himself, Hank Brown from Colorado, I interviewed him for an article and was amazed by him--but I digress).
Anyway, what was I saying? Oh, right. I'm in a rage about Republicans and Democrats alike. Nancy Pelosi? I wish a tree would fall on her. Right now. I know, I know, it's such a hateful thing to say, but I don't know how someone can stand up in front of God and country and say how hard they are working for the people when you have as much going on behind the scenes that is total bull as that woman does.
And health care reform? What a crock. What's missing from all of "their" proposed bills, plans and big ideas? Hmmm? Maybe REFORM? If I showed you the tens of thousands of dollars in health care bills lying around our house, you'd freak. Ever taken a look at what big ticket items, like, say cancer or nearly cutting off a few fingers in a saw will cost you? Medical bankruptcy. It's not just for breakfast anymore.
As an example, Eamonn has been working with the local hospital and physical therapy office to deal with the exorbitant payments we owe on his hand (and I'm not telling you all of this because I want you to feel sorry for us; I'm telling you this because it could happen to anyone. We're all just one quick medical nightmare from bankruptcy. And I want you to be mad about it so that something gets done to change it.).
So, back to Eamonn and the hand. We still owe many, many thousands of dollars to cover what insurance didn't cover. Eamonn was talking to the PT place and found out that the PT facility has already received from our insurance company MORE than it would have received from a Medicare patient. Hmmm, so someone who comes in with Medicare pays a different rate then we pay because we have different insurance? And so, because we had "better" insurance, we are left holding the bag for thousands more. Many of you may already know this. We're just discovering the joys of all of it now.
And don't even get me started about how only one person in our house (Declan) qualifies for "normal" insurance right now. The rest of us all had to go on different state plans because no one would give us covereage because of pre-existing conditions. A bad pap smear. Yep, it will keep you from getting insurance, even when the result was wrong and a biopsy proves it. They won't care.
Oh good grief. What a rambling rampage I'm on. I think the frustrating thing is that I see no light at the end of this hideous health care tunnel. If you are anything but a perfectly healthy person, you're screwed. And you may think you're healthy, but that nosebleed you had last week? Well, the insurance company is convinced you have a brain tumor and will send you a letter telling you they'll cover everything except to any current or future ear, nose, throat, brain or cancer issues.
All of these reforms people in our government are talking about? It's all just window dressing so they can say they're doing something for the people. What people???? I think it's the people with nothing. The rest of the "middle class" is totally getting screwed. I just read an article about how the privately insured will still see huge premium increases under "ObamaCare." Huge increases? I got nowhere else to go, people!
And don't get me started on the whole topic of why are our legislators designing a health care program for "the rest of us" when they won't even be using it? I want to be on their plan! Hell, I'm paying for it!
I'm going to go take a valium and calm down. Oh wait. I can't. My horrible prescription coverage makes valium too expensive.
A few deep breaths.
So my point here is to put a face on this health care dilemma. It's not just the homeless and jobless and illegal immigrants who are having trouble. It's people you know. It's my family. A two-income family that just happens to be privately insured, who has worked their asses off and has nothing but boxes of medical bills and fricking EOBs to show for it.
And has a child who has survived cancer, for which I'm grateful, just in case it sounds like I'm not. I'll trade financial solvency for my children's health any day, just so you know.
But it shouldn't have to be this way.
And so what does all of this mean in my twisted mind? Do we need government run health care? No. Why? Because no government run by either party could run it effectively, in my mind. They're all crooks and bandits and couldn't successfully run an ice cream stand at the beach in the middle of July without a whole bunch of paperwork filled out before you could purchase your artificially flavored popsicle, which was approved by the FDA, but is killing you.
What we do need is reform of the insurance industry, which frankly, will never happen because of the lobbying that goes on in this country. We need reform of the medical system simultaneously. They say they charge so much because the insurance industry reimburses too little. So frankly, they both need a kick in the ass and some good penalties to force them to get their respective acts together.
Most importantly, and more important than the ravings of a crazed woman like myself, what is happening with Finn? For now he'll need to use a nebulizer two times a day to get him straightened away and breathing normally. Hopefully we can cut that down to once a day. And then hopefully he'll grow out of it.
But until then I'll be exploring all sorts of other things--changes to diet, accupuncture, voodoo, etc.--to see if there's a better way to help him. Let's face it, did you expect that I'd do anything less than explore some whackadoo alternative medicine? Admit it--you'd be disappointed if I didn't.
Yours in Nuttiness,
PS--I don't know how to make our government see what is happening to the "little people" and make them understand, and my frustration stems from that. Let's see if my blog post can go viral on the Internet. Send every person you can to this post and maybe I'll end up on the Today show talking about the real face of health care!